Jonny Kennedy, The Story of the Boy Whose Skin Fell Off
Added: 7th July 2008
The Story of The Boy Whose Skin Fell Off was published in September 2007 by Tonto Books.
Written by Roger Stutter and foreword by the model Nell McAndrew Jonny Kennedy was the star of the unforgettable Emmy award winning documentry "The Boy Whose Skin Fell Off”. He was an extraordinary character determained to live an ordinary life being born with the agonising genetic skin condition resessive dystropic epidermolysis bullosa (EB for short).this meant his skin could literally fall off at the slightest touch. It was a daily struggle having courage, determination and wit, offering insperation to millions around the world. Tragically Jonny was just 36 when he lost his final battle to skin cancer. This is his moving, honest and uplifting story.
Nell McAndrew says "I was very fortunate to have met such a special person and I will never forget him"
About the author
Roger Stutter was one of Jonny Kennedy's closest friends, and spent many months recording Jonny's innermost thoughts and recollections for this extraordinary memoire. Additional topics are provided by Edna Kennedy, Jonny's mum and Nell McAndrew, who befriended Jonny in his final months. It is hoped the book will raise awareness of Jonny's condition for the charity that continues his work.
The book is priced at £9.99 can be purchased through our website via e-mail at info@jonnykennedynortheast.org.uk, or by calling direct on 07738076081.
Events Calendar
Newcastle United
Date: 31/01/2009
JONNYKENNEDYNORTHEAST HAVE APPROACHED NEWCASTLE CITY COUNCIL FOR A PERMIT TO HAVE A FUNDRAISING DAY IN NEWCASTLE CITY TO CORRESPOND WITH THE DERBY MATCH BETWEEN NEWCASTLE UNITED & SUNDERLAND ON...
