Jonny Kennedy Media

Welcome to the Jonny Kennedy Media Centre. Here you can find coverage of selected JKNE fundraising events, as well as unseen footage from the award winning documentary The Boy Whose Skin Fell Off.

Please select a video from below to load into the media player.


Media Selection

Jonny's Phone Unseen footage from The Boy Whose Skin Fell Off TV documentary. In this clip Jonny talks about how he overcomes EB to use his mobile phone.
Jonny's Hands Unseen footage from The Boy Whose Skin Fell Off TV documentary. In this clip Jonny talks about how EB has affected his hands.
The Boy Whose Skin Fell Off Book Signing A short clip covering the book signing of “Jonny Kennedy the Boy Whose Skin Fell Off”, in Asda Gateshead.
Foot Dressing Part 1 Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny discusses how he lives with EB as he has bandages removed from his foot.
Foot Dressing Part 2 Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny discusses how he lives with EB as he has fresh bandages applied to his foot.
Epidermolysis Bullosa Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny describes EB and the effect it has on sufferers.
Smartly Dressed Man Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny talks about what it would mean to him to be able to dress smartly.
Alnwick Post Office Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny takes a trip to the Post Office.
Cafe Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny talks about how he likes to get out and about while in the surroundings of his favourite cafe.
Jonny Kennedy Media Section

Jonny Kennedy Media

Visit our Jonny Kennedy Media section to view unseen footage from The Boy Whose Skin Fell Off TV documentary.

Jonny himself tells us how EB has affected his life, from the clothes he has to wear to the places he likes to visit.