Jonny Kennedy Media

Welcome to the Jonny Kennedy Media Centre. Here you can find coverage of selected JKNE fundraising events, as well as unseen footage from the award winning documentary The Boy Whose Skin Fell Off.

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Media Selection

Jonny's Phone Unseen footage from The Boy Whose Skin Fell Off TV documentary. In this clip Jonny talks about how he overcomes EB to use his mobile phone.
Jonny's Hands Unseen footage from The Boy Whose Skin Fell Off TV documentary. In this clip Jonny talks about how EB has affected his hands.
The Boy Whose Skin Fell Off Book Signing A short clip covering the book signing of “Jonny Kennedy the Boy Whose Skin Fell Off”, in Asda Gateshead.
Foot Dressing Part 1 Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny discusses how he lives with EB as he has bandages removed from his foot.
Foot Dressing Part 2 Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny discusses how he lives with EB as he has fresh bandages applied to his foot.
Epidermolysis Bullosa Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny describes EB and the effect it has on sufferers.
Smartly Dressed Man Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny talks about what it would mean to him to be able to dress smartly.
Alnwick Post Office Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny takes a trip to the Post Office.
Cafe Unseen footage from The Boy Whose Skin Fell Off TV documentary. Jonny talks about how he likes to get out and about while in the surroundings of his favourite cafe.
Epidermolysis Bullosa Community Forum

Community Forum

Share your experiences of Epidermolysis Bullosa, be it as a carer or a sufferer, online in our forum.

Our community forum is free to use and brings people from all over the world together in one place for help, support and advice.