Trustees
Edna Kennedy
Jonny Kennedy’s mother Edna Kennedy is actively involved in the appeal. Edna Kennedy asks you to please support Jonny Kennedy North East and help make a difference to children and adults across the North East living with EB.
Eric Duffield
Eric Duffield is a co-founder and fund raiser for Jonny Kennedy North East. After watching The Boy Whose Skin Fell Off, Eric was shocked to discover how many children and adults suffer from EB. He was astounded that despite this affliction Jonny had a great sense of humour.
GILLIAN JENKINS
JILLIAN JENKINS WAS RECENTLYNOMINATED AND ACCEPTED AS THE NEWEST TRUSTEE TO THE CHARITY.GILLIAN WHO SUFFERS FROM EB SIMPLEX ALSO HAS A 4 YEAR OLD SON EWAN WITH THE SAME CONDITION.
Jonny Kennedy Book
The Story of The Boy Whose Skin Fell Off is available to buy now from Jonny Kennedy North East.
The book is written by Roger Stutter, Jonny's closest friend, and has a foreword written by Nell McAndrew.
