Jonny Kennedy

Welcome to Jonny Kennedy North East

Jonny Kennedy North East was created to follow the wishes of Jonny Kennedy, helping other sufferers of Epidermolysis Bullosa and their carers.

The charity aims to provide computers to all its members, creating a community between everyone. To find out more about us follow the link below.

More information on Epidermolysis Bullosa (EB)

Epidermolysis Bullosa

Edpidermolysis Bullosa is the name of a rare group of genetic skin disorders causing blistering and shearing of the skin.

In this section you can find more information on Epidermolysis Bullosa, who it can affect and how sufferers cope with the disorder.

More information on Epidermolysis Bullosa (EB)

Jonny Kennedy Book

The Story of The Boy Whose Skin Fell Off is available to buy now from Jonny Kennedy North East.

The book is written by Roger Stutter, Jonny's closest friend, and has a foreword written by Nell McAndrew.

The Story of The Boy Whose Skin Fell Off