Jonny Kennedy

Welcome to Jonny Kennedy North East

Jonny Kennedy North East was created to follow the wishes of Jonny Kennedy, helping other sufferers of Epidermolysis Bullosa and their carers.

The charity aims to provide computers to all its members, creating a community between everyone and assisting those families around the world with Eb related needs. To find out more about us follow the link below.

Jonny Kennedy Media Section

Jonny Kennedy Media

Visit our Jonny Kennedy Media section to view unseen footage from The Boy Whose Skin Fell Off TV documentary.

Jonny himself tells us how EB has affected his life, from the clothes he has to wear to the places he likes to visit.

Jonny Kennedy Media Section
Epidermolysis Bullosa Community Forum

Community Forum

Share your experiences of Epidermolysis Bullosa, be it as a carer or a sufferer, online in our forum.

Our community forum is free to use and brings people from all over the world together in one place for help, support and advice.

Epidermolysis Bullosa Community Forum