Jonny Kennedy

Welcome to Jonny Kennedy North East

Jonny Kennedy North East was created to follow the wishes of Jonny Kennedy, helping other sufferers of Epidermolysis Bullosa and their carers.

The charity aims to provide computers to all its members, creating a community between everyone and assisting those families around the world with Eb related needs. To find out more about us follow the link below.

Jonny Kennedy Media Section

Jonny Kennedy Media

Visit our Jonny Kennedy Media section to view unseen footage from The Boy Whose Skin Fell Off TV documentary.

Jonny himself tells us how EB has affected his life, from the clothes he has to wear to the places he likes to visit.

Jonny Kennedy Media Section

Jonny Kennedy Book

The Story of The Boy Whose Skin Fell Off is available to buy now from Jonny Kennedy North East.

The book is written by Roger Stutter, Jonny's closest friend, and has a foreword written by Nell McAndrew.

The Story of The Boy Whose Skin Fell Off