Jonny Kennedy

Welcome to Jonny Kennedy North East

Jonny Kennedy North East was created to follow the wishes of Jonny Kennedy, helping other sufferers of Epidermolysis Bullosa and their carers.

The charity aims to provide computers to all its members, creating a community between everyone. To find out more about us follow the link below.

More information on Epidermolysis Bullosa (EB)

Epidermolysis Bullosa

Edpidermolysis Bullosa is the name of a rare group of genetic skin disorders causing blistering and shearing of the skin.

In this section you can find more information on Epidermolysis Bullosa, who it can affect and how sufferers cope with the disorder.

More information on Epidermolysis Bullosa (EB)
Jonny Kennedy Media Section

Jonny Kennedy Media

Visit our Jonny Kennedy Media section to view unseen footage from The Boy Whose Skin Fell Off TV documentary.

Jonny himself tells us how EB has affected his life, from the clothes he has to wear to the places he likes to visit.

Jonny Kennedy Media Section