Jonny Kennedy

Welcome to Jonny Kennedy North East

Jonny Kennedy North East was created to follow the wishes of Jonny Kennedy, helping other sufferers of Epidermolysis Bullosa and their carers.

The charity aims to provide computers to all its members, creating a community between everyone. To find out more about us follow the link below.

Jonny Kennedy Book

The Story of The Boy Whose Skin Fell Off is available to buy now from Jonny Kennedy North East.

The book is written by Roger Stutter, Jonny's closest friend, and has a foreword written by Nell McAndrew.

The Story of The Boy Whose Skin Fell Off
Epidermolysis Bullosa Community Forum

Community Forum

Share your experiences of Epidermolysis Bullosa, be it as a carer or a sufferer, online in our forum.

Our community forum is free to use and brings people from all over the world together in one place for help, support and advice.

Epidermolysis Bullosa Community Forum