Jonny Kennedy North East was created to follow the wishes of Jonny Kennedy, helping other sufferers of Epidermolysis Bullosa and their carers.
The charity aims to provide computers to all its members, creating a community between everyone. To find out more about us follow the link below.
Added: 17th Nov 2008
JKNE would like to announce the successful opening of their new shop at 6 Park Avenue, Whitley...
Jonny Kennedy, The Story of the Boy Whose Skin Fell Off
Added: 7th July 2008
The Story of The Boy Whose Skin Fell Off was published in September 2007 by Tonto Books.Written...
Added: 27th May 2008
As a new charity Jonny Kennedy North East is always looking at ways to develop new relationships...
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Edpidermolysis Bullosa is the name of a rare group of genetic skin disorders causing blistering and shearing of the skin.
In this section you can find more information on Epidermolysis Bullosa, who it can affect and how sufferers cope with the disorder.
Visit our Jonny Kennedy Media section to view unseen footage from The Boy Whose Skin Fell Off TV documentary.
Jonny himself tells us how EB has affected his life, from the clothes he has to wear to the places he likes to visit.
